zgodba mojega poroda / the story of my birth

Zgodba mojega poroda je bil zagovorniški in raziskovalno-ozaveščevalni projekt Inštituta Umbilica, namenjen razkrivanju in zmanjševanju kršitev pacientovih pravic v obporodni oskrbi v Sloveniji. Projekt je izhajal iz izkušenj strokovnjakov z obporodnega področja ter iz številnih pričevanj žensk, ki so porod doživele kot travmatično izkušnjo, a kršitev zaradi sistemskih ovir pogosto niso mogle ali želele prijaviti.

V okviru projekta smo razvili metodološko ustrezen spletni vprašalnik za zbiranje podatkov o izkušnjah žensk v nosečnosti, porodu in poporodnem obdobju, hkrati pa izvajali obsežno ozaveščevalno kampanjo o porodniškem nasilju, pravicah pacientk ter pritožbenih možnostih. Pripravljena so bila tudi praktična orodja za lažjo in bolj samozavestno komunikacijo staršev z zdravstvenim osebjem. Na podlagi zbranih podatkov smo pripravili analitično poročilo in zagovarjali vzpostavitev delovne skupine na Ministrstvu za zdravje, katere cilj je bil izboljšati kakovost, spoštljivost in človeku dostojno obporodno oskrbo v Sloveniji.

Kaj smo dosegli

• Vzpostavljen je bil trajen sistem za beleženje kršitev v obporodni oskrbi, ki temelji na stalno aktivnem spletnem vprašalniku.
• Pripravljen je bil strukturiran seznam najpogostejših kršitev in neprimernih praks, objavljen v obliki javno dostopnega poročila.
• Ozaveščevalne vsebine so dosegle 218.582 oseb, ustvarile 20.737 obiskov, 3.217 interakcij in 507 delitev na družbenih omrežjih.
• Razvita in uporabljena so bila komunikacijska orodja za stik z zdravstvenim osebjem, v obliki kratkih in dolgih kartic za komunikacijo v akutnih situacijah.
• Fizično je bilo razdeljenih 1.000 komunikacijskih kartic, zbranih pa 260 povratnih informacij pacientov in zdravstvenih delavcev.

Projekt Zgodba mojega poroda je prispeval k boljšemu dostopu do zdravstvenih storitev za ženske in osebe z motnjami avtističnega spektra (MAS). V sodelovanju z Udrugo za skrb autističnih osoba Rijeka so bile v hrvaščino prevedene kartice za podporo komunikaciji z zdravstvenim osebjem, ki uporabnikom omogočajo jasnejše izražanje potreb in aktivnejše sodelovanje v zdravstveni obravnavi.

Pomemben del projekta je predstavljala tudi izmenjava znanj in izkušenj med partnerskima organizacijama, ki je prispevala k boljšemu razumevanju potreb oseb z MAS v zdravstvu, zlasti reproduktivnem zdravstvu.

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The Story of My Birth was an advocacy and research-based awareness-raising project implemented by the Umbilica Institute, aimed at identifying and reducing violations of patients’ rights in perinatal care in Slovenia. The project was grounded in the experiences of perinatal care professionals and numerous testimonies from women who experienced childbirth as traumatic, yet often could not or chose not to report violations due to systemic barriers.

Within the project, we developed a methodologically sound online survey to collect data on women’s experiences during pregnancy, childbirth, and the postnatal period, while simultaneously conducting a comprehensive awareness-raising campaign on obstetric violence, patients’ rights, and available complaint mechanisms. The project also produced practical tools to support clearer and more confident communication between parents and healthcare professionals. Based on the collected data, we prepared an analytical report and advocated for the establishment of a working group at the Ministry of Health, with the aim of improving the quality, respectfulness, and human-centred nature of perinatal care in Slovenia.

What we achieved

• A permanent system for recording violations in maternity care was established, based on a continuously active online questionnaire.
• A structured list of the most common violations and inappropriate practices was compiled and published in the form of a publicly accessible report.
• Awareness-raising content reached 218,582 people, generating 20,737 visits, 3,217 interactions, and 507 shares on social media.
• Communication tools for interaction with healthcare staff were developed and used, in the form of short and extended communication cards for acute situations.
• 1,000 communication cards were physically distributed, and 260 feedback responses were collected from patients and healthcare professionals.

The project contributed to improved accessto to healthcare services for women and people on the autism spectrum. In cooperation with the Association for the Care of Autistic Persons Rijeka, communication support cards for use with healthcare professionals were translated into Croatian. These cards enable users to express their needs more clearly and to participate more actively in healthcare processes.

An important component of the project was also the exchange of knowledge and experience between the partner organizations, which contributed to a better understanding of the needs of people with ASD in healthcare settings, particularly in the field of reproductive health.